Saturday, November 24, 2012

Anybody home?

I realized something tonight. I have always assumed that if someone is staring blankly off into space, there is no one home, that they are off in some world of their own and unaware of what is going on around them. I have learned, that at least in some cases, that is far from the truth.
Over the last few weeks, I have had times where I cannot speak. It's hard to describe because I do not understand it myself, but I will do my best to explain so that you can perhaps catch a glimpse of what it's like. Today, I was tired. I woke up, had breakfast, took a shower, then laid back down "for a minute". I fell asleep, dreamed pretty steadily, although I do not remember what I dreamed, woke up in a panic when Jason came into the bedroom for something and quickly went back to sleep, only to dream some more. Jason came back into the bedroom a little while later, around 1pm, and again I woke up. This time, I decided I would get up. I got up and struggled to make myself move. I vacuumed the living room (random thing to do fresh from a nap, I know, but I wanted to feel useful), then I decided to go for a walk to try to jump start some endorphins. I thought maybe if I got out in the sun and started walking, my energy would kick back in. Jason was talking to me as I was vacuuming and getting ready for my walk, and I heard every word he said, but it took so much energy to respond that my answers were short and monotone. Mentally, I was fully aware, but it took so much out of me to even speak.
I set out for my walk, but unfortunately, it did not have the effect I wanted. The leaves were so pretty, and I absorbed their beauty and watched as they fell like a downpour from the trees, but as I got about six blocks from the house, I noticed I was walking like a zombie. I wondered what the neighbors would think if they saw me shuffling my feet, with my arms limp at my side, but I kept walking. Then I got overwhelmingly tired. I just wanted to sit down on the edge of the sidewalk and, well, just sit there, but I knew I needed to get home, so I forced myself to keep walking.

When I got home, Jason tried to talk to me and once again, I completely understood what he was saying and wanted to answer, but I couldn't. I answered mentally, with full on sentences as I would if I could speak, but I did not have the energy, or the ability to get the words out of my mouth. Everything else in my body was working fine. I could walk. I could use my arms and hands. Nothing else seemed out of the ordinary. I could respond to Jason's cues to squeeze his hand, but I just couldn't get myself to speak. After a couple minutes, however, for whatever reason, my verbal ability came back and I was able to carry on a normal conversation and have been able to speak for the rest of the day.
As I was sitting in church tonight, it dawned on me that when I have met people who appear catatonic, or who answer with mono-syllables, or have a distant look in their eyes, I get really uncomfortable and avoid them, assuming that they aren't able to relate to their environment, but I have decided no more! No matter how people appear on the outside, I am going to assume that they are fully cognizant. I know that not all people have the same experience I do, and that not all people who appear distant are actually fully lucid, but some are, and I don't want to take the chance of hurting someone, or mistreating someone, who is already suffering as a prisoner in a body on the fritz. A little love and compassion can go a very long way.

Friday, November 23, 2012

My Village


A year and a half ago, when my mental illness started to really make itself known, I was very open about it. I think mostly because I was naïve and didn’t realize the cost of putting my “crap” out there for everyone to see. What I discovered is that when you put your crap out there, it sometimes gets flung right back at you and I was not ready for that. It hurt more than I care to admit, and I retreated into my shell.
I’m realizing, however, that I am not doing anyone any good by keeping my experience to myself. It is my hope that what I am going through will help others on both sides of the spectrum: those who are struggling with mental illness and those who love someone who is ill, but may not understand what they are going through or how to help.  So I’m putting on my poncho and my rubber boots, coming out of my shell, and putting my crap back out there. Feel free to fling it back at me. I’m ready for it this time.
Today is a good day for me. I seem to be coming out of my fog and am pretty close to my functional self again. This will likely last a few more days before I begin to gradually sink back down into the suffocating, life-sucking tentacles of depression again. My mental illness seems to be correlated to my monthly cycle, and if it follows the pattern it has been following for nearly two years now, I should be pretty miserable again within a couple weeks. But then again, some months aren't as bad. Maybe I'll get a Birthday/Christmas reprieve. We shall see.
Like I said, today is a good day, so I am making the most of it. My head is relatively clear and I have no desire to die, so I’ll take it, I will enjoy it, and I will put it to good use. I am hoping that over the next few days, I will be able to tell some of my story here, before I go back into survival mode for a few weeks.
I’m reading a lot about mental illness these days, trying to understand mine and give myself hope that I will be able to crawl my way out of this and become a fully functional human being again. I read something in Morning Has Broken, by Emme and Phillip Aronson, that actually prompted me to write this post. Phil writes:
Remember Hillary Clinton’s book, in which she talked about how it takes a village to raise a child? Well, it takes a village—and then some!—to help someone through a depression, and I was blessed to live among such loving, caring, supportive villagers. Sure, some of the natives got a little restless, and threw up their hands at what must have seemed to all concerned like frustrating behavior, but they were there for me the entire way, and I wouldn’t be here to write this account were it not for their amazing extra efforts.
I have been tremendously blessed by a group of friends and family who are supporting me on this journey. Some have been with me from the beginning and others have joined me along the way. Your support, love, encouragement and prayers have helped me more than I can say! I do not expect my friends/family to have all the answers. I do not expect you to even be able to point me in the right direction. And I definitely do not expect you to go through all of this with me without being fazed by my moods, my outbursts and the roller-coaster ride that comes with being part of my world. I know they are hard to take sometimes and I am truly sorry for the affect they have on you. But knowing that you love me even when you don’t understand, and knowing that you will forgive my weaknesses and pray for my strength is a huge source of comfort on this journey. The hugs, the prayers, the texts and conversations of support, and the help with the kids during doctors’ appointments and on the really rough days…I cannot thank you all enough. Thank you all for being part of my village. I am blessed.

Monday, November 19, 2012

Mush

My brain is mush today. I'm so frustrated with this. Counting the days until December 5th, when I get to see the psychiatrist. We've tried getting in earlier. I made this appointment as soon as I got out of the mental hospital in early October, and that was the first opening they had. My therapist even called them last week to see if there was any way to get in sooner, to no avail. So I wait, and eat lots of carbs and other serotonin rich foods in an attempt to stay functional. I don't even want to know how much weight I've put on. But I'd rather be fat and functional than skinny and rocking back and forth in a dark corner, holding my head because the "brain vice" is so strong. So I'm self-medicating with food, exercise and vitamins, and holding my breath until I can hopefully get some more permanent and consistent relief. I have tried handling this without meds, but I'm waving the white flag of surrender and begging, hoping, praying that the doctor will be able to find a medication that works for me. Please, Lord Jesus, please. I want my brain back. I want stability back. I want my life back!

Saturday, November 17, 2012

Hush. Be still!

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What if I’m going crazy? Why did they leave me? Why does it still hurt so dang much?! “We don’t need your drama!” “You’re a control freak!” “Get off my phone!” “My problem is YOU!”
What if I’m wrong? What if God is angry at me? What if I never get over this? What if the medications don’t help? What if I end up like the naked old man on D block, crawling around on all fours, moaning?
What if I speak up and people hurt me? What if I don’t speak up and all this is for nothing? What if I speak up and find I have nothing helpful to say? What if people aren’t helped by what I’m going through? What if no one trusts me ever again when they know how crazy I really am?!

Shh. Be still.
Be still. Be still. How do I be still? How do I quiet myself? How do I get these thoughts to stop? Where is the off button? Is there an off button? Maybe there isn’t an off button. Maybe the shrink won’t be able to help me. Maybe I will be like this for the rest of my life. I can’t live like this for much longer. I just can’t! I’m tired. So very, very tired. Tired of hurting. Tired of struggling. Tired of trying to hold my head up each and every day. Tired of chasing the thoughts around in my head. Tired of wondering what others are thinking of me. Tired of waiting for the next blow from a friend and wondering whom it will come from. Tired…Tired… Tired…
“Come to me, all you who are weary and heavy laden, and I will give you rest.” Matthew 11:28
I’m here, Lord, trying to quiet my soul before you. Why can’t I quiet my soul? I am so very, very tired, and oh, so scared. I’m scared to be hurt. I’m scared the pain will never, ever stop. I’m scared I will be like the naked man on all fours. But I said that already. You’ve heard all this already, over and over and over like a never-ending record.
“Be still and know that I am God.” Psalm 46:10
I KNOW that you are God!! But what I DON’T know is why you are leaving me here! Why, God? Why have you left me in my pain? Why have you left me in the illness that seems to be descending heavier and heavier upon my soul?! Where are You?!
“Never will I leave you. Never will I forsake you.” Hebrews 13:5
No, Lord, and you never have.
“Sometimes God lets you hit rock bottom so that you will discover that He is the Rock at the bottom.” Dr. Tony Evans
Yes, Lord. You HAVE been my Rock. You have been my strength. Time after time you have carried me through, as you are doing right now, but Daddy, I’m running out of strength. Help me, dear Jesus! Make this all end! PLEASE give me your peace. Please give me relief. Please, dear God. I can’t take much more.